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Hi Survivor 45 I just had to click on your post. Personally I haven’t dated anyone since my diagnosis and before that my symptoms made my last relationship unmanageable. The worst part was that I didn’t know why I was in pain or felt fatigued all the time and it just disappointed my partner or...

Hi SBee I also get flustered easily with important appointments, even with all my lists and questions in order. I too find that one of my biggest fears is not being believed. Also if/when that happens, I tend to clam up and then the appointment really goes to waste. I’ve found that bringing...

Hi mrclo I suffer from terrible anxiety and nausea. I agree with SBee that having an anti anxiety medication on hand is often calming enough at times, just knowing I have that glass to break in case of emergency. As for a daily medication, I’ve been run through the gamut and had different side...

Hi JamieMarc I apologize, I don’t have any further information for you. However I wanted to jump on this thread because this is something I am interested and curious about as well. I have read about the benefits of vibration and considered researching it further. I’d love to hear from other...

Hi MrBrett I also use medical marijuana and CBD. My main source under that umbrella that I’ve found helpful are CBD balms and salves. For days when I’m having unbearable pain, I can rub those on and the pain does diminish. Depending on the day and pain level, sometimes it can take the pain in...

I thought of another resource for navigating MediCare. It’s shiphelp.org. You can find your local SHIP office and they’ll answer any questions you have regarding MediCare. Although I’m only 42, I’m disabled and have been on MediCare for 15 years so I feel like I know at least some of the ins...

I also agree with JayCS. Acupressure has helped me on the days I’m unable to do acupuncture. There are videos on YouTube or a couple great accounts run by reputable practitioners on Instagram. Let me know if you’d like more information about any of those, I’m happy to help. 😊

Hi Mary I’ve also found relief with acupuncture and an acupuncturist that I adore. I’m on MediCare as well. Medicare will cover 8 visits per year plus another 12 more if your practitioner signs off on it. So while the treatment doesn’t cover the whole year, at least it’s something. MediCare...

Actually it’s not a male drug at all. Tadalafil is a PDE inhibitor and works to increase blood flow. Its first use was for the treatment of angina. Curing erectile dysfunction was mostly an accidental side effect of the drug and has since been marketed as such for various reasons that I won’t...

To my knowledge, every physical therapy experience is different. There is no such thing as normal physical therapy. However there are different types of practitioners and types of physical therapy. You may just need to find the right fit, as you would with a doctor or anyone serving you in the...