Hello everyone. I have had my fibro diagnosis for a little over a year but have largely been in denial. Now I am pretty much over that and trying to figure out how to live with this. Do others experience a really bad day after a good day. My fibro seems to be increasingly more symptomatic and there are days when I can't get much at all done but then I have a day where I feel pretty good and get a lot done. But then the next day I pay for the good day in pain, fatigue and generally feeling lousy. I hate this up and down. How do you pace yourself to not have such extremes?
I’m having a hysterectomy in about 10 days due to fibroids and possible recurrence of ovarian cysts. I’ve been in a flare since the beginning of the year and am concerned about the procedure/disruption in routine making things worse. But also wonder if getting this done might make things a bit better. Anyway, anyone have any suggestions for surgery recovery?
New to the forum and wanted to reach out to those of you that could offer some guidance on care giving role I play. My wife of 35 years has battled Fibro for 7 years now. Background: I still work full time and have to travel out of town occasionally. She manages pain with Butrans patch and supplements with Tramadol Lamictal for anxiety/bipolar stabilizer I manage most of the household and most of the errands and shopping.
Dx August 2017. On Gabapentin 300 mg three times a day and Prozac 20 mg. Since then I have added CBD, NADH, turmeric, and a few other supps trying to get better. I get therapeutic massages too. First few days of Jan, I felt the best I’ve felt in a year and a half. I had weaned down to the gab only twice a day also
Today I was formally diagnosed with FM and will probably come away with a ME diagnosis as well. Here's the thing, I was already diagnosed when I was 17 years old. Back when it was “all in your head", and having comorbid illnesses only solidified the idea of it just being in my head. In all my doctor's appointments, I have never mentioned this diagnosis. Never. I didn't want to be accused of being a hypochondriac or worse; q malingerer. How do I feel now? I want to cry. For all the things I've lost. For all the things I never had, for all the things I can forget about ever having.
I was diagnosed with Fibro in 2009 by an excellent neurologist. I had a sleep-study test which showed I had "nonrestorative" sleep. I have been taking topamax for migraines; ambien for sleep; melatonin for sleep; klonopin for anxiety; cymbalta for fibro.; armour thyroid for Hashimoto's; worsening low back pain; sciatica; fibro fog; sjogren's; arthritis, and carpal tunnel in both wrists. My present neurologist tapered me off klonopin. I still have anxiety especially now that I am older. I exercise, however, it isn't easy as I will have residual pain later.
After almost 20 years of suffering with fibro an extraordinary thing has happened. I was having dementia problems and was sent for a brain MRI.I was diagnosed with HYDROCEPHALITIS, water on the brain. Six weeks ago I had a brain shunt put in. It has been a Godsend. The bonus is that my fibro has quieted down. I haven't asked the neurologist about this yet, but thought I would share.
I was diagnosed with fibro 3 years ago & was started by my rheumatologist on Cymbalta. It helped a lot for the first couple of years, but then I got all the side effects of the medication. After trying different remedies prescribed by my rheum. and primary care, I almost weaned off the Cymbalta which, in my opinion, is a horrible drug.
My doctor and I suspect that I have endometriosis... my friend has fibromyalgia and and endometriosis as well and I have heard about a lot of women having both... and even that their fibromyalgia "hid the symptoms of their endo, allowing thier endo to progress for a long time before they found out that they had it. I was just wondering if anyone has both conditions and if anyone would know the connection between both conditions?
Diagnosis fibromyalgia chronic pain tiezites (feels like broken ribs. Everyday for life) disease. 2014 my physical health came to sudden crisis. Exposure to life changing event triggered physical pain. "The body remembers trauma" My specialist GP prescribed a low almost non therapeutic dose of prednisolone over a week period sliding scale. I am also hypersensitive to all medication after a"NDE"resus (CCU 10 days) anesthetic adverse reaction morphine overdose during emergency spinal surgery (surg successful)