Just not feeling it today!

SweetWithSour

Distinguished member
Joined
Sep 15, 2023
Messages
140
Reason
Other
Diagnosis
01/2001
I'm working on going through the motions today, trying to get myself picked up and get moving. At the moment here it isn't even 7am yet. I've been awake for over 6 hrs already. I'm out on the back patio trying to relax appreciate the little things in life and enjoy my morning cup of coffee. I am feeling like it's time for me to pack it in for the day and head off back to sleep. I'm so flipping over sleeping my days away! The past two weeks, my CFS has drained most of my energy and I'm sleeping WAY too much! 32 hr, 18 hrs, 16 hrs and 14 hrs have been the regular amount of hours my body has crashed over the past few weeks. I'm one for listening to my body, but this is beginning to feel absurd! Yes I have had lab work and am scheduled for MANY specialist Dr appointments. I currently am just at a point of complete and total exhaustion. The amount of energy it takes to even lift my arms is disproportionate to the activity. I'm absolutely and completely drained. The activity that I can tolerate at the moment is listing to audio books. I have my favorite narrator cued up and have been listening to a series to help pass the time. It is one that I'm very familiar with so I am in and out of sleep while listening. Grrrrrrrr this FM and CFS can be so darn frustrating at times!!!!!! Yes I know that this too will pass. I just needed a moment to just be frustrated, mad and upset that I've been in a crash cycle. I'm so ready for a little spark in energy to come back. I know it will, I just need to be patient and in due time I'll get back to pre crash state. Until then grrrrrr :)
 
If you need to rest your body's telling you something (I do get it I've got fibro and cfs) it can be really annoying when (if) the life you had before was very different to now (or you see people doing things and getting on with life in ways you can't) but everybody's life is different (I had to accept a while ago) life has changed and it is this way (also check you diet see if there's anything that could be added or taken away) I love audio books (pretty much 70% of my life is online now, ) I was like a flitting butterfly before chronic fatigue and fibro tag teamed up and changed my entire life! 🩷🤗🩷
 
life has changed and it is this way
Thank you so much for the reply and the gentle reminder! You are absolutely right.

Regarding diet, yes there are absolutely things that need removed and added!!! My lab work is a complete mess at the moment. Monday I have a consult with a Dr for my kidneys and an appointment with my rheumatologist and endocrinologist in the not so distant future.

Thank you again for the much needed support and reminders for acceptance while still looking at what may need tweaked (diet) to feel my best. 🤗
 
You're welcome, 100% please make these appointments (it could be another reason why your feeling unusually tired) 🤗🍀🤗
 
I currently am just at a point of complete and total exhaustion. The amount of energy it takes to even lift my arms is disproportionate to the activity. I'm absolutely and completely drained.
Just wanted to let you know that you are not alone and I feel your frustration. Just thinking about getting in the shower exhausts me! 😩 Family doesn't get it. Which just makes the frustration at my own body worse.

I hope things turn around for you soon, in the meantime listen to your body. It knows what's best for you.
 
Just wanted to let you know that you are not alone and I feel your frustration.
Thank you for understanding and for letting me know I'm not alone. I'm so sorry others experience this too, but wow is it nice to know that someone understands.

I don't worry so much about my family not getting it anymore. They just can't and won't. I'm more vocal what I need from them when I need something from them (which isn't often as I try and keep it to an absolute minimum).
I've found an outlet with my podcast that helps a bit. However here, I feel like I've found my peeps!!!!

I'm bummed you just aren't feeling it right now and are struggling too. Sending you lots of healing positive thoughts and well wishes!!!!
 
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