arachnerainbow
Member
- Joined
- Jan 22, 2016
- Messages
- 16
- Reason
- DX FIBRO
- Diagnosis
- 11/2015
- Country
- US
- State
- Iowa
The first signs of fibromyalgia came about when I was in college. My arms would be aching after completing blue book tests, and my knees would hurt from climbing stairs all day. I figured this was normal at the time. After about a year or so, however, I found my legs throbbing, my arms throbbing, and I had to sleep with ice packs.
Fast-forward to today: Now, I get sharp pain shooting up and down my limbs, with deep aching in my hips for most of the day. I walk with a cane sometimes, to help with aching limping, and spend most of my nights stretched out on my couch, suffering through the throbbing.
Not all days are like this, thankfully, but it seems to becoming more and more the norm.
I don't really know if I have fibromyalgia, although I do relate to many of the symptoms. I think the specialists kind of gave up and decided to "settle" on this diagnosis. I see a neurologist every few months, and take Trama-dol several times a day. I've read that using pain killers to treat fibromyalgia is very much not recommended, so I'm pretty sure that the doctor who prescribed it in the beginning had assumed that I was fishing for narcotics, and every doctor I've seen after that assumed it was the correct course of action to follow.
I have many other health problems, as well. I tell new nurses and doctors that I've won the genetic liability. Recently, I've been diagnosed with irritable bowel syndrome, which they tell me has a high co-morbidity rate with fibro. I get migraines often. I have GERD. I have costochondritis. PTSD. I shake a lot. I get heat stroke ridiculously easily. My sense of taste and smell has become so sensitive, I sometimes struggle with being with other people, or eating foods I used to love. About two years ago, my sight began to weaken, so now I struggle with reading, and I'm incredibly sensitive to light, preventing me from driving at night when everyone uses their headlights.
I see a therapist, a nurse practitioner for mental health medications, a specialist for digestive disease, a neurologist, as well as my GP. If it weren't for my GP, I probably would have given up a long time ago. I often feel she is the only one who believes me when I tell her about my health problems.
I also have an amazing husband, who has proven himself to be very patient, understanding, and compassionate. Occasionally, he might think I'm exaggerating, but he always realizes in the end that I'm suffering, and that I need his help. He does so much to support me, I'm waiting for him to collapse from exhaustion. Yet, he keeps going. From carrying me into the house, to calming me down and medicating me when I'm having an episode, to kissing my nose when I feel like giving up, he has always been there for me. I thank the fates every day for leading me to such a beautiful soul.
I came here to learn more about fibromyalgia, and to hopefully learn more about my body, and how I can work to prevent it from holding me back. I'm only 25, and I still have so many things on my list to do, that don't involve lying on my couch at night.
Fast-forward to today: Now, I get sharp pain shooting up and down my limbs, with deep aching in my hips for most of the day. I walk with a cane sometimes, to help with aching limping, and spend most of my nights stretched out on my couch, suffering through the throbbing.
Not all days are like this, thankfully, but it seems to becoming more and more the norm.
I don't really know if I have fibromyalgia, although I do relate to many of the symptoms. I think the specialists kind of gave up and decided to "settle" on this diagnosis. I see a neurologist every few months, and take Trama-dol several times a day. I've read that using pain killers to treat fibromyalgia is very much not recommended, so I'm pretty sure that the doctor who prescribed it in the beginning had assumed that I was fishing for narcotics, and every doctor I've seen after that assumed it was the correct course of action to follow.
I have many other health problems, as well. I tell new nurses and doctors that I've won the genetic liability. Recently, I've been diagnosed with irritable bowel syndrome, which they tell me has a high co-morbidity rate with fibro. I get migraines often. I have GERD. I have costochondritis. PTSD. I shake a lot. I get heat stroke ridiculously easily. My sense of taste and smell has become so sensitive, I sometimes struggle with being with other people, or eating foods I used to love. About two years ago, my sight began to weaken, so now I struggle with reading, and I'm incredibly sensitive to light, preventing me from driving at night when everyone uses their headlights.
I see a therapist, a nurse practitioner for mental health medications, a specialist for digestive disease, a neurologist, as well as my GP. If it weren't for my GP, I probably would have given up a long time ago. I often feel she is the only one who believes me when I tell her about my health problems.
I also have an amazing husband, who has proven himself to be very patient, understanding, and compassionate. Occasionally, he might think I'm exaggerating, but he always realizes in the end that I'm suffering, and that I need his help. He does so much to support me, I'm waiting for him to collapse from exhaustion. Yet, he keeps going. From carrying me into the house, to calming me down and medicating me when I'm having an episode, to kissing my nose when I feel like giving up, he has always been there for me. I thank the fates every day for leading me to such a beautiful soul.
I came here to learn more about fibromyalgia, and to hopefully learn more about my body, and how I can work to prevent it from holding me back. I'm only 25, and I still have so many things on my list to do, that don't involve lying on my couch at night.