1. J

    My Trial of Low Dose Naltrexone LD N for my fibro, "ME/CFS", MCAS and post vac Long Covid

    Instead of bits'n'bobs in passing, a separate diary-like thread, like @JamieMarc's guaifenesin one. (Meandering off here is no problem for me.) LD N has surprised me by being the one thing that's made the most sustainable improvement to my conditions. After and besides 100s of others that I...
  2. M

    After 30 years of Fibro, I am finally feeling Human again.

    This is my first post. I just have to tell someone how to get better. I was diagnosed back in 1991, when the term was relatively new. I managed to limp through work using FMLA until 2000 til I was almost ready to die.(2 of those years I was on leave for clinical depression) I did not start...
  3. M

    Cloths, Shampos, lotions, light sensativity, etc.

    There has to be those of us that have by trial and error have found some things to be better than others, as far as what works for you. I have the super dry skin problem, still looking into what that problem stems from, I "think" there is more going on other than Fibro, but, I have tried every...
  4. H

    A Physician Who Gets It.

    I posted earlier a link to this article. I didn't realize that registration was needed to view the article. Here is the article. "Vancouver – “We have less power, pharmacologically, than we thought. The vast majority of people are getting adverse effects in return for nothing,” said Dr. Tom...
  5. DoobieBrother

    Avoiding Gluten

    Just wanted to see if anyone else has found gluten to bea trigger for flares ? A few years ago I went through a three month food trial, where I cut out wheat, dairy, etc., then reintroduced one at a time. I was quite surprised how much better I began to feel when I dropped wheat from my diet...
  6. S


    I've read many articles correlating magnsium deficiency and fibromyalgia symptoms. For example, Mayo Clinic did a clinical trial of a topical Magnesium solution. They claim to have positive results. Anyone here who has tried Magnesium supplements? Do you feel they're helping? Thank you!
  7. S

    Non-Drug Clinical Trials

    I just wanted to make people aware who don't want drugs/don't get relief from drugs that there are current clinical trials for other therapies: yoga, mediation, devices, etc. If you go to the NIH clinical trials database and type in the search bar fibromyalgia and your state, you can see what's...
  8. S

    Herpes/Fibro, IMC-1 update

    I see there had been a previous thread about this clinical trial. So supposedly there were positive results (although no results have been posted on the NIH database) and it has been granted fast-track status by the FDA, and phase III is scheduled for 2017. I don't know how all the pieces fit...
  9. S

    Mitochondrial Damage and Fibro

    I hope this is OK to post; I had been on salmeterol xianofoate for off-label use during a clinical trial I had participated in. Towards the end of the trial, I started coming down with myofascial pain and a litany of other health issues that worsened and evolved over the past 8 months; things...
  10. B

    Low dose naltrexone

    Anyone tried this. They did a trial study and preliminary evidence continues to show that low-dose naltrexone has a specific and clinically beneficial impact on fibromyalgia pain. The medication is widely available, inexpensive, safe, and well-tolerated. Parallel-group randomized controlled...