SweetWithSour
Distinguished member
- Joined
- Sep 15, 2023
- Messages
- 140
- Reason
- Other
- Diagnosis
- 01/2001
I have had FM over 20 years. I've lived with it rather successfully (at the time I had defined that as still doing what I want) for many of those years. The last 3 years did NOT feel the same. I went to the doctor and symptoms were pushed off to anxiety depression and fm. I have done so much around my anxiety and depression with professional treatment and therapy. I still wasn't feeling better. I kept pushing. I then looked to my husband to help advocate for me as he has seen the quality of my life DRASTICALLY change for the worst. I had become housebound, mostly bed bound. I couldn't even eat without becoming exausted. My husband had to start helping me in the shower because I was passing out and couldn't bare the energy to even shampoo my head. I would be winded walking to the bathroom. Forget bending over, I would become winded and often pass out.
May is when things changed and my Healthcare team have been looking much deeper for answers. Sadly it took a huge seizure in May to get them taking me seriously. I normally attend doctor appointments by myself. I have asked my husband to come along to my appointments and help advocate on my behalf. I've asked him to hare what he has have seen, to take notes, ask questions, and most importantly demand answers because there is a problem well beyond FM, anxiety and depression.
Today I'm one step closer with a diagnosis. I'll still need more testing to find a tumor in my body somewhere that is making me so tired, so brain fog, much increased pain, and all of the muscle contractions.
The reason for this post is to keep advocating for yourself. If you're not being heard, bring someone along who will advocate for you! Listen to your body. Tune into your FM patterns and reactions. If something is off, recognize it, assess it for yourself, keep an extra eye on it, and when in doubt, always check it out. It takes a while to tune into your FM self and recognize what may be a change in your FM symptoms. If it feels off or different, connect with your Healthcare team
May is when things changed and my Healthcare team have been looking much deeper for answers. Sadly it took a huge seizure in May to get them taking me seriously. I normally attend doctor appointments by myself. I have asked my husband to come along to my appointments and help advocate on my behalf. I've asked him to hare what he has have seen, to take notes, ask questions, and most importantly demand answers because there is a problem well beyond FM, anxiety and depression.
Today I'm one step closer with a diagnosis. I'll still need more testing to find a tumor in my body somewhere that is making me so tired, so brain fog, much increased pain, and all of the muscle contractions.
The reason for this post is to keep advocating for yourself. If you're not being heard, bring someone along who will advocate for you! Listen to your body. Tune into your FM patterns and reactions. If something is off, recognize it, assess it for yourself, keep an extra eye on it, and when in doubt, always check it out. It takes a while to tune into your FM self and recognize what may be a change in your FM symptoms. If it feels off or different, connect with your Healthcare team