Hi everyone " this is me " , nearly 72 years young ( I wish ) , diagnosed with Fibromyalgia & Lupus some 30 years ago , a shock at first but just carried on with work , family , etc. Slowly I started seeing change in my body , eventually had to give up work. Everyday it was a different part of my body that was effected, Visit the Consultant , have the blood tests , get the results, chat about medication etc etc.
Now in my senior years I have worn out the path to my Doctors , osteoarthritis set in , had a total hip and knee replacement , unfortunately because of my Fibro my knee didnt take well , you have a 6 week window after op to utilize the new knee , I was so swollen after op that I was not able to work on my knee properly , hence it dosnt bend and is solid .
Unfortunately in 2014 I had Breast Cancer ( pagets disease ) and had to have my left nipple removed and a slice taken to check if it had spread, I was lucky , but after any op there is calcification and a residue of pain which means I am always on my guard for any changes , which meant last year I had to have a special core biopsy , TG the results were fine , but the fibro didnt help in the healing process.
Fibro is an opportunist , when you think you are doing ok , it strikes again , no guessing where , muscle burn, swollen joints and tissue , pain, there are no good days for me , just better bad days.
With the Covid restrictions I have not met my new Consultant yet , its self diagnosis over the phone, however I am hopeful I will be able to go to my November appt where she said I am due a complete MOT.
In the last 2 years I have been practically a sitting tenant at the local Hospital with xtra ailments , a lot I am sure is tissue based and inflammation , so I have been subjected to more "prodding".
Everyone is different , I find I have to pace myself and set myself doable tasks , otherwise life is a mess , even the smallest tasks sometimes I end up useless for a couple of days.
Pain management is at my discretion , unfortunately I am a " sensitive soul " where meds are concerned , and because of my Lupus also , I have to be careful what I take , which for my GP is a nightmare , especially if its a antibiotic .
In typing all this I wonder if I have gone overboard , In some respects I am lucky as there are others who suffer more , but believe me there are days when I curse , rant and rave with frustration of what might have been , but dosnt everyone say that ?, running out of space now
Take Care all of you , apologies if I have gone on too much,
Now in my senior years I have worn out the path to my Doctors , osteoarthritis set in , had a total hip and knee replacement , unfortunately because of my Fibro my knee didnt take well , you have a 6 week window after op to utilize the new knee , I was so swollen after op that I was not able to work on my knee properly , hence it dosnt bend and is solid .
Unfortunately in 2014 I had Breast Cancer ( pagets disease ) and had to have my left nipple removed and a slice taken to check if it had spread, I was lucky , but after any op there is calcification and a residue of pain which means I am always on my guard for any changes , which meant last year I had to have a special core biopsy , TG the results were fine , but the fibro didnt help in the healing process.
Fibro is an opportunist , when you think you are doing ok , it strikes again , no guessing where , muscle burn, swollen joints and tissue , pain, there are no good days for me , just better bad days.
With the Covid restrictions I have not met my new Consultant yet , its self diagnosis over the phone, however I am hopeful I will be able to go to my November appt where she said I am due a complete MOT.
In the last 2 years I have been practically a sitting tenant at the local Hospital with xtra ailments , a lot I am sure is tissue based and inflammation , so I have been subjected to more "prodding".
Everyone is different , I find I have to pace myself and set myself doable tasks , otherwise life is a mess , even the smallest tasks sometimes I end up useless for a couple of days.
Pain management is at my discretion , unfortunately I am a " sensitive soul " where meds are concerned , and because of my Lupus also , I have to be careful what I take , which for my GP is a nightmare , especially if its a antibiotic .
In typing all this I wonder if I have gone overboard , In some respects I am lucky as there are others who suffer more , but believe me there are days when I curse , rant and rave with frustration of what might have been , but dosnt everyone say that ?, running out of space now
Take Care all of you , apologies if I have gone on too much,