There's various things a bit strange at the moment, like emojis sometimes not making saving possible.Also, I’m not getting notifications anymore, so I apologize if I miss comments.
You mean the asthma med montelukast/Singulair I think?Hello I find this very interesting but my fibro came on after taking montekulast and steroids regularly.
Well, I guess they were right, just they meant themselves ;-).My doctor had no idea at all about it ... the other doctors at the surgery ... no they have no idea either as if to say well that is the end of the matter go away silly woman.
How do you mean "told", I can't remember: without further tests, altho always indicated?rheumatologist ... ages for an appointment and then saw someone who told me yes it is fibro, research it, ... painkillers and showing you how to do gentle exercise (I was expected to travel twenty miles to be shown how to do these gentle excises when in a lot of pain and no car). I said as for the exercise I can go on you tube or work it out
You haven't mentioned it, but I'd think your research quickly took you to the meds pregabalin/Lyrica, or gabapentin/Neurontin, duloxetine/Cymbalta and amitriptyline - but because of your experience with montelukast/Singulair and the steroids you wanted to keep away from meds and preferred supps?surely you can do more than painkillers (which give me side effects like awful stomachs). No he said that is all we can do. So I went off and researched and researched.
It only appears so because males and young people are underdiagnosed. After the criteria dropping the tender points test, males have drawn almost level. Due to belated diagnosis, and the accumulation,It occurred to me that most of the people who have fibro are female and most of them are past reproduction age and
Of course hormone changes and operations can add to pain and trying to change the hormones may help that part, altho it may be dabbling in dangerous waters. Did it help? My orthopedist who tried to be a bit naturopathic gave me progesterone which didn't help, and suggested testosterone, but that'd've been for life, and I'm theoretically at the lower end, but my verve thoroughly disfavoured it.many of my symptoms started or got worse after menopause and then worse still after hysterectomy. So I researched all that and came up with insisting that they let me try estrogen patches.
I'd suggest getting your potassium tested, if you haven't yet: I did naively take it a while, without it helping, but then found out I actually have too much, which can cause severe problems too. It wouldn't have much to do with fibro generally, it would be your specific form - if it helps. Does it? To be sure it hasn't depleted I've just got it tested again.I also started to take magnesium (proper sea natural ) and potassium every day seeing as I found out that my asthma inhalers deplete your magnesium and potassium and this can lead to aches and pains, brain fog, weakness, insomnia etc. Ive been doing all this for a while and need to tweek it and adjust it as it goes along, still a lot of experimenting, but am sure I am onto something and of course the potassium and magnesium are beneficial to me anyway.
reminds me of my experience (that the pharma company said never happens) - a little bit of depakote and voila! I was living in another dimensionIt was causing me audio and visual hallucinations! ( I thought my house was haunted, I wasn't putting the two together) I worked it out eventually
I'm not aware of it being possible to take serotonin, so I guess you mean supps that increase it like tryptophan, 5-HTP, GABA, theanine or co-factors like B6, NAC, NADH, passiflora, rhodiola?I am now taking estrogen and serotonin and am feeling far less aches and pains, brain fog etc than before.
Yeah, similar here too, but I'm not sure my wife loves me for doing that.. I'll ask..! .partner ... better off without me ... not interested... I research things a lot and am resourceful and think for myself
Praps I'm luckier that mine accept things while readily admitting that they haven't the time to take part in my research-searches.doctors they often jump to conclusions and want the easy way out. .. wont accept things that mean a lot of work
LOL, or 10 different answers.... Again I'm luckier that mine always admit they are guessing, so they can't be wrong in that sense, and I agree with them that most of it is guesswork and needs my validation.If you ask five doctors for an opinion about x you get five different answers, at least four are wrong, so it follows people who are not medically trained will often be wrong too.
If I had a cent for every time some person has tried to advise me I would be able to retire a rich woman. I prefer to work things out for myself. I know my medical history and me far better than anyone else, and know a lot about this stuff.
I thoroughly agree not to jump on quick advice! Unfortunately many people aren't in the position to do deep searches, for many reasons. My goes out to them and I very much hope forums like ours can support and help by breaking research down and showing a variety of options with their pros and cons.Knowledge is power so the best advice I can give anyone is to research and research and learn, not ask others, ....
So please, think for yourself and get the facts, don't take the easy way out and assume that if someone jumps in with this or that they are right because it is quicker. In the long run it wastes a lot of time and is slower.
It is of course very difficult to allow for all situations, unless it is stated when asking for advice, like "bearing in mind". What we try is to offer what in our experience and to our knowledge is possible somewhere and wait for people to select themselves, which they have to for many reasons.People on forums also forget that we are all over the World. I am in England. Get this test and get that test is
Ah, now I realize you're talking to me....And with some of the tests it is plain common sense that wins over. We are not able to put everything here it would take hours to type it and hours to read it. But one example. I tried all different forms of magnesium and sea water variety worked best and is worth extra FOR ME. Maybe not for you or others but for me. My partner also needs magnesium and prefers that one. So please do not assume we need lessons in all the different types of magnesium. We had thoroughly researched it and tried many forms. Most people who need magnesium also need potassium, and a little "extra" can only help. So I take that too when I feel I need to. I don't need to get private expensive tests to tell me that.
What can I say?do not assume we need lessons .... Nobody in their right mind .... Learn to think for yourself more, .... you should not need a mentor or nanny over something so simple. I have other things to do! I am a member of MENSA the high intelligence association, ... I've seen many old people get dementia because they just sit watching tv all day or chatting and never expand their minds or really think. Thinking means problem solving. Not pushing it onto a nurse or doctor or forum and waiting for others to do things.
.... it is ridiculous to say go to physio for this. I am not going to spend ... The physio shows you how to do it, and you can go on you tube, but once they have shown you they leave you to do it yourself. If you can do that yourself you can do fibro exercises on your own yourself at home too.
Some people are their illness, it is all they think and talk about. Some live with their parents and leave their parents to pay the bills and do the chores. I am 65 - I own my own very nice big house, I take care of it, I run a business on
I cannot afford the luxury of spending all of my time on my illness or a lot of money on unnecessary expense. It's not mentally healthy to think about nothing other than your illness anyway. It can destroy a good marriage. You could bore your other half to tears with it. It can lose you friends. Some become child like (or already were) when they get a chronic illness. Some hide behind their illness as an excuse to do nothing else and have no responsibility and pass it all on to others. Fatal to those who do it and fatal to those around them. And again it destroys relationships.
....and like so many other members of that group that I have come across over the years, you seem to like shoving that in people's faces. (for what it is worth, i probably could be a member, but have no desire to be because of this kind of attitude)I am ........... a member of MENSA,
I don't come here often because I am not one of those people who have nothing else to do all day and I dont' need advice.
I am not interested in being lectured or talked to as if the person on here is some sort of unqualified doctor who knows it all and talks down to me. I put such people on ignore.