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  1. E

    I used to pray God would come get me

    I used to sit in pain cry and begging God to come get me. Then I finally got diagnosed. And it seemed the meds. We're starting to work. Slowly I went backwards. We changed meds, severe negative response, changed meds again had just started to see a slight improvement and my 18 year old son...
  2. V

    Absolutely furious!

    Hi all, I have just come back from the rheumatologist. My doctor referred me to one so he could diagnose me with fibromyalgia. My doctor thinks I have it. I have every single symptom apart from IBS. I was only in the room with him for 7 mins. I wrote all my symptoms down but he didn't...
  3. T

    Feeling worthless :-(

    I just need to vent somewhere where others actually understand what I'm going through. I've always been a hard working and over-achiever. I look back and see that there was a time when I was a wonderful mother. We baked together, cooked food from scratch, looked forward to preparing meals for...
  4. O

    For the outdoorsy types...

    Anyone out there love hiking/kayaking/backpacking etc? I used to love to be outdoors and very active until I started having health problems at 15. Now, I am 21 and for years have had a sense of identity loss because I have been unable or afraid to do what I once did weekly. I'm trying to get...
  5. T

    Low Dose Naltrexone

    Hi I am new here. Has anyone tried low dose naltrexone? I take 4.5 mg per day. I take it at night. LInk Not Allowed! When I first went on it, a few months ago, I was euphoric because the pain just seemed to lift! But with time the pain returned however a little milder. Even with the pain...
  6. L

    New to the "club" in western NY

    Hello out there in fibro land. Just want to say how glad I am to see this support forum. It has been very helpful. I have been having RLS for quite a few years now and lately it had gotten quite bad even in day time. Also had that warm water flush feeling in my legs. Just saw taht others have...
  7. X

    Fibro? Or something else?

    Hi all! 28 male Australia here with some questions. I had an upper respiratory infection about 6 weeks ago (still have a cough) however iv had some really odd symptoms that I think might be fibro. - constant body aches, mostly quick sharp pains in joints and muscles - increase of anxiety...
  8. F

    Hiya!

    Howdy everyone! I'm obviously new and also newly diagnosed cfs/fibromyalgia. I was diagnosed 3 days ago. So far I'm only on tramadol but only till my next appointment. I don't react well to a lot of medications so I know it's going to be difficult finding the right combination of meds. I try my...
  9. T

    Volunteer

    I am so tired of sitting around feeling sorry for myself and would like to do something useful. I thought about trying to volunteer at my local animal shelter or hospital but with my physical limitations I don't know that anyone would accept me. I can walk but only for short periods of time...
  10. J

    Low Sodium V8 Gives me a NICE LIFT

    I'm much older than most here I believe and seem to be the most active in posting. I've never been a V8 person but a friend who deals with CFS and we share a lot of info on our issues...got me on to V8 as it contains High Potassium....She and I have discussed potassium levels and read all about...
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