Hey, friends. First of all, I’m sorry you have reason to be in this forum. I have been in pain for around five months and it’s been incredibly difficult so my heart goes out to those who are in it.
First of all, I’d like to disclose that I have severe health anxiety which I’m aware of. I am taking anxiety medication for this and attending weekly therapy sessions. For the past few weeks I have been terrified that I have als, however now that I’m out of panic attack mode and am able to think more clearly I am thinking fibromyalgia. (I’ve had muscle weakness that improved and pain and tingling which point away from it.) If you have time to read my story and share your thoughts, I would appreciate it.
I have always had hip and back pain that almost feels like my hip isn’t connected to my pelvis. This pain typically comes and goes but in august it started up and stuck around. I visited the doctor and the chiropractor, both of which told me I had sciatic nerve pain and that was it. In October it got worse quickly and to the point that I couldn’t walk. It improved after some physical therapy and I am back to my normal life. My muscle weakness is still here but has improved greatly. However, I’m now experiencing muscle tightness in my right side (the most affected.) I had an MRI Friday and the neurologist said that my spine looks good and what I’m experiencing is SI joint pain and that he recommends toughing it out if possible.
About six weeks ago, I started experiencing pain and weakness in my right shoulder and arm. It honestly felt like I had pulled something but it hasn’t gone away so I don’t think that is it. I’m also feeling some of this in my left arm now. My right is worse. What I’m feeling now is a burning pain in my bicep, muscle tension, and weakness. Today I took a nap with my son and we fell asleep with him on my arm and I woke up because it was tingling so badly.
I’ve also developed fasciculations (small painless muscle twitches) all over my body. As of Friday, I’ve started getting cold chills/shivers even when I’m not cold. (I’ve ordered a magnesium supplement.)
Today I’ve been having some strange poking pain. I won’t say stabbing because it doesn’t hurt that badly but it feels like someone is taking a sewing needle and poking me. I’ve also(in the last few months) had some leg/feet tingling, coldness, and numbness through out this. And my feet are cold very often.
What I’m experiencing most now is upper back pain and joint popping, shoulder and arm weakness and pain, muscle tightness, and tingling.
My mom had lupus, RA, scoliosis, copd, and fibromyalgia. My doctors have ruled out lumbar disc issues, lupus, and RA.
Does this sound like it could be fibromyalgia to you or sound similar to your story? I’ve been looking for answers for months and I’m struggling so bad mentally. I have an appointment with my PCP Tuesday and I’m praying to get some guidance. I just keep leaving appointments with more questions than I had before. Also, if you can think of anything I should ask her or mention, I’d appreciate it!
First of all, I’d like to disclose that I have severe health anxiety which I’m aware of. I am taking anxiety medication for this and attending weekly therapy sessions. For the past few weeks I have been terrified that I have als, however now that I’m out of panic attack mode and am able to think more clearly I am thinking fibromyalgia. (I’ve had muscle weakness that improved and pain and tingling which point away from it.) If you have time to read my story and share your thoughts, I would appreciate it.
I have always had hip and back pain that almost feels like my hip isn’t connected to my pelvis. This pain typically comes and goes but in august it started up and stuck around. I visited the doctor and the chiropractor, both of which told me I had sciatic nerve pain and that was it. In October it got worse quickly and to the point that I couldn’t walk. It improved after some physical therapy and I am back to my normal life. My muscle weakness is still here but has improved greatly. However, I’m now experiencing muscle tightness in my right side (the most affected.) I had an MRI Friday and the neurologist said that my spine looks good and what I’m experiencing is SI joint pain and that he recommends toughing it out if possible.
About six weeks ago, I started experiencing pain and weakness in my right shoulder and arm. It honestly felt like I had pulled something but it hasn’t gone away so I don’t think that is it. I’m also feeling some of this in my left arm now. My right is worse. What I’m feeling now is a burning pain in my bicep, muscle tension, and weakness. Today I took a nap with my son and we fell asleep with him on my arm and I woke up because it was tingling so badly.
I’ve also developed fasciculations (small painless muscle twitches) all over my body. As of Friday, I’ve started getting cold chills/shivers even when I’m not cold. (I’ve ordered a magnesium supplement.)
Today I’ve been having some strange poking pain. I won’t say stabbing because it doesn’t hurt that badly but it feels like someone is taking a sewing needle and poking me. I’ve also(in the last few months) had some leg/feet tingling, coldness, and numbness through out this. And my feet are cold very often.
What I’m experiencing most now is upper back pain and joint popping, shoulder and arm weakness and pain, muscle tightness, and tingling.
My mom had lupus, RA, scoliosis, copd, and fibromyalgia. My doctors have ruled out lumbar disc issues, lupus, and RA.
Does this sound like it could be fibromyalgia to you or sound similar to your story? I’ve been looking for answers for months and I’m struggling so bad mentally. I have an appointment with my PCP Tuesday and I’m praying to get some guidance. I just keep leaving appointments with more questions than I had before. Also, if you can think of anything I should ask her or mention, I’d appreciate it!