fatigue flare up

[Rainbow]

I’d love to body swap with an athlete for a week

Just the idea of doing that is making me tired!

 

[Rainbow]

I have not been diagnosed with chronic fatigue but I get into these weeks of fatigue where I can barely do anything. If I am moving like when shopping I am awake enough but as soon as I sit down, I fall asleep during what I am doing.

Does anyone else have flare ups of fatigue even if pain isn't flaring up?

Yes, physical & mental exhaustion are my main symptoms, that & seemingly losing my ability to think of words, names & places,
even names of household objects.
In fact, losing my ability to speak sense anymore, if indeed I ever did.

 

[JayCS]

losing my ability to speak sense anymore, if indeed I ever did.

Hehe.. I wouldn't say mine has gone that bad. It's just that it gets such a strain to talk sensibly. Breaks and gibberish is increasing a bit. But generally I can type all day with a bit of sense all day, correcting quite a bit, but not too much. My editing is more due to knowing that I write too much and complicated... sorry for that... and I think that's the hyper-chaos in my mind I've always had, not that much fibro/MCAS....

 

[Rainbow]

I suspect I have 'Senior Tourettes' & I reckon that should be added to the list of symptoms asap.
I embarrass myself with what I say.
It's like I can't engage my brain before I speak.
I shall email to whoever wrote the list.
No I won't,
cos I will have forgotten I was going to do that by the time I've opened a new tab.
Where was I.... ?

 

[Auriel]

I have considered just playing charades instead when I can’t think of the words/sentences I’m tryna say

 

[JayCS]

I have considered just playing charades

Much too tiring to consider anything! With mates I just stop in my tracks - bit of dramatic effect. And with my wife I just blunder on and blurt out a word or two that come to my mind, an effect which comes over more like Honey in my Head-dementia than Mrs. Malaprop (from Sheridan's The Rivals. No, had to look it up; thought it was from Wilde's The Importance of Being Earnest).

Murphree seems to be a chiropractor. Tempting that he talks about GABA

Ah.... perfect! But maybe I write so overcomplicated anyway that people think I must have meant something deeeep. Or did I?

 

[Auriel]

i want a reality tv now mr and mrs @JayCS or you two on gogglebox

 

[JayCS]

Murphree seems to be a chiropractor. Tempting that he talks about GAB

I must have meant something deeeep. Or did I?

Who'd've thought: I did, I meant "It is tempting to me that he talks about GABA"...

i want a reality tv now mr and mrs @JayCS or you two on gogglebox

Me too! My wife always mimics me, must be worth watching. But that's always too early when she does so, it feels as if I'm waking up out of a strange dream, wondering what my brain has just produced. Be something different to be fully awake and watching it on the gogglebox. (Just took a few minutes to remember what a gogglebox is... but without looking it up...)

 

[Rainbow]

I write a list every night with next days day/date & whatever I've got scheduled to do that day,
it really helps me to start the day with some level of clarity & intention
ie reminding me what planet I'm on & who I am, or more accurately, what's left of who I used to be.
As well as reminding me what I should be doing.

Having said all that, the list often gets lost overnight
(I suspect there's a Black Hole skulking about here in The Hobbit Hole).
Or I ignore what's on the list as I have a bad case of 'CBA' (Can't Be A---d) or 'Bothered' in polite society.

Not that I have much, if anything at all, to do with any form of society
& anyway, am pretty sure if such a thing exists, it's only in remnants now, if that
& would I want to be a part of it even if it still does exist in some form.

Eg I've wanted to go to Glastonbury my whole life
but now, catching occasional snippets of footage of it on The Haunted Fish Tank,
I pray a silent prayer of silent, sincere, grateful thanks that I'm not there.

Something has definitely changed.

I suspect it's me.

 

[fimi]

Not that I have much, if anything at all, to do with any form of society
& anyway, am pretty sure if such a thing exists, it's only in remnants now, if that
& would I want to be a part of it even if it still does exist in some form.

I feel the same Rainbow, I seem quite happy pottering around doing my own thing nowadays.
"Change" has come sooner and in a stranger way than I expected...think that may be a combination of both fibro and age!!

 

[JayCS]

I seem quite happy pottering around doing my own thing nowadays.... combination of both fibro and age

Have I already told you this recent story?: When I said to my main table tennis mate a few days ago that I feel something's changed I meant due to the acupressure the day before again dysbalancing me, but in a slightly different way. Again I have seemingly more energy, but still can hardly play 3 games without considerable problems. He pounced on that, saying: yes, you're sitting alone in your room all day, and your wife comes along once in a while. A bit confused what he's on about, I replied that that's not new, it's been the way it's going since fibro started, and considerably increased since the jabs, and there's no solution other than getting a handle on my energy, but it's OK being housebound and only max. 2x30 mins contact per day. Next day I phoned my other table tennis mate and he started on laboriously saying what we could all do together, not just table tennis, we could discuss philosophy etc. he'd love to. I just said thank you as the phone call was already longer than 4 minutes . Next day the other mate after 2 games got some stick: Have you been putting around that I need more contact to feel better?? You do realize that I'm taxed to the max at the moment? He admitted: not sure, but it does sound like me. Met the other again in our group later for 30-40', but they saw I wasn't doing well and I didn't have to pressure the issue too much....

Fibro and age?
In my case if at all personality, being a mixture of extravert & introvert/shy I've never needed many friends, & partying and stuff only to dance. And definitely considerable worse, or I prefer to say: less, from the MCAS/jabs. So not age, not really personality, bit from fibro.

 

[fimi]

I've just got to the piont where I can go without the socialising a lot easier ( that makes me sound like a right misery)

Yet I can't do without my animals and spending time in the garden, listening to the birds etc. I find that really difficult.

If I had a heallthy me to compare to, I'd be able to say with conviction if it's age or fibro that's made me change, but unfortunately there's only the one of me, and if I'm honest I think I've just become more grateful and at peace with the world around me.

 

[JayCS]

Yet I can't do without my animals and spending time in the garden, listening to the birds etc. I find that really difficult.

Do you mean you can't spend time with these?!?

 

[fimi]

Do you mean you can't spend time with these?!?

Ooh no...I have to spend time with these to keep me sane

 

[Auriel]

What’s the haunted fish tank? Is that another name for YouTube?