Yeah, mine also fluctuates quite often, but once an hour day and night
is 'normal' for me, most annoying is having to go every 20 minutes for about 3h, and if I don't get there inside of minutes it gets worse and more painful. I had that before fibro too, but not as painful. Dreadful anywhere without toilets or on holidays, so as my docs joke I quickly know all the toilets in any town. Started getting imperative to first sort out where I can go.
Good to know others know that touch of incontinence too, my wife was worrying it's something worse until my bladder exam a few weeks ago came clean.
As abdominal problems, e.g. IBS, are part of the criteria of fibro's "symptom severity score", I can well see people with fibro but without official IBS having the odd bowel problems more than non-fibro.
I've found I'm now able to keep all that under control pretty perfectly, and I'm pretty sure that's more my elimination diet than my supps. I suffered terribly from abdominal problems from my teens on. And it's never been better than now, cos the need has grown so high to at least get under control what I can. When it happens now I think it's usually after eating food that was in hindsight slightly off.
The "Euro key" (see wikipedia) unlocks toilets and other facilities for people disabled or with specific problems for free (invented in Germany in 1986). 100,000 in Europe, 350 in the US, supposedly. In the UK the "Radar / NKS" key (>9,000, NKS = National Key Scheme, from Disability Rights UK, see wikipedia).
Found that out from listening to a local online talk by my GI doc, some patient representatives knew that. Always worth keeping eyes and ears open.
Altho my "degree of disability" isn't quite sufficient, and I haven't got Crohn's, I'll have enough GI & bladder problems to warrant getting one, just I'm no longer able to go far from our flat anyway.