newbie

Status
Not open for further replies.

ormy69

New member
Joined
Feb 20, 2013
Messages
4
Diagnosis
01/2012
Country
uk
State
tyne and wear
hello everyone. I'm new today and hope I can get lots of feedback. There's not a lot known about Fibromyalgia in the UK... ty
 
Last edited by a moderator:

Lilly-mae

Member
Joined
Feb 10, 2013
Messages
10
Diagnosis
09/2011
Country
UK
State
Cornwall
Hi, im new on here too. Ive been diagnosed for almost 2 yrs now but have had fibro pain since i was 9 yrs old, and the doctors took along time to find out. I never even heard of fibromyalgia till my rheumatologist said that the first time i seen him, i was so shocked and scared. The first thing i did was looked it up on google, i couldnt believe what i was reading about it.

How long have u had the pains of fibro? What did u do when u find out ur illness?
 

ormy69

New member
Joined
Feb 20, 2013
Messages
4
Diagnosis
01/2012
Country
uk
State
tyne and wear
i have had since childhood and was always told it was phsoratic arthritous .but was diagnosed about 2 year ago...and yes your right i thought it was something they made up..now ive come to terms with it i try and live each day as it is ..as you know it all depends on how much sleep it allows you to have...and at present im suffering with my feet terribly both in bed and out i can hardley walk with the pain..as like everyone else we all deal with it differently...but sometimes i do ask why me
 

painfull56

New member
Joined
Feb 20, 2013
Messages
4
Diagnosis
06/1980
Country
CAN
State
ontario
re newbie
hi i have had fibro for 35 years i hurt every where i was in a car accident in 1978 was dianosed at first it was called fibrisites i asked the doctor if he had any thing to read up on all he gave me was a verse fro THE BOOK OF JOB I COPE WITH GODS GRACE 2Corinthans chapter 12
doctors in canada still dont believe and all i here is nothing we can do so i am searching for altenative ways
 

painfull56

New member
Joined
Feb 20, 2013
Messages
4
Diagnosis
06/1980
Country
CAN
State
ontario
re newbie
hi i have had fibro for 35 years i hurt every where i was in a car accident in 1978 was dianosed at first it was called fibrisites i asked the doctor if he had any thing to read up on all he gave me was a verse fro THE BOOK OF JOB I COPE WITH GODS GRACE 2Corinthans chapter 12
doctors in canada still dont believe and all i here is nothing we can do so i am searching for altenative ways i trust in GOD I HAVE JUST CAME TO THE POINT last year where i cant work any more
 

Michelle2

Active member
Joined
Feb 18, 2013
Messages
31
Diagnosis
06/2011
Country
CA
State
ON
I live in Northern Ontario and finally found a doc that you should try and see. Dr. Collins, Orillia, Ontario, Canada. For me there are 3 big issues that I am trying to cope with. 1. Depression 2. Lack of sleep 3. Pain.
No magic answers but seeing this doctor was soothing. Well worth the long travel to see him.
Michelle
 

Janet L

Distinguished member
Joined
Jan 17, 2013
Messages
132
Diagnosis
12/2012
Country
US
State
Texas
It was difficult here to find a good doctor too. You have to be relentless :)
 

ormy69

New member
Joined
Feb 20, 2013
Messages
4
Diagnosis
01/2012
Country
uk
State
tyne and wear
so sorry to here but like th uk they dont beleive...im sure at some point we can cope i dont have an altertive as ive found nothing to ease it my self but hope u can hope 1 day like us all...and if not just have a moan to us,,,i no im here for that dunno bout every 1 else,,,, so just moan away hun ill listen...sometimes i just want that
 

1sweed

Moderator
Joined
Feb 4, 2013
Messages
1,956
Reason
DX FIBRO
Diagnosis
01/1995
Country
US
State
Pennsylvania
Hey there ormy, I am glad you found us. This forum will provide you with coping skills and the means of understanding the condition, as well as, giving you a chance to make a bunch of new friends that do understand the pain you feel and want to help. I hope you keep coming here and share your opinions and problems your having, so maybe we can provide answers and keep you smiling more often. Get to it now and start posting and I will look forward to reading and answering your questions. Hope you had a good day. :)
 
Status
Not open for further replies.
Top