Unable to sit

[Dance no more]

Could very well be lumbar stenosis.

 

[Novascotialady]

Sunkacola
Thank you for all of this advice I have a Physio and an OT, and I do exercises and stretches every day. That is the only thing that keeps the stiffness down. I do have a tinge unit and use it a lot for the neuropathic pain. However, I will try it again for the crawling sensations. I took milk out of my diet as I noticed I was lactose intolerant due to the process of illumination. I will try for gluten as well.
I am in the process of looking for a kneeling chair, and that is a great suggestion. I just wish I had something that I could use so that I could travel on a plane anyone have any suggestions on how I could travel when I cannot sit for more than a few minutes without having a huge flare in pain.?

 

[Novascotialady]

Tested for Lyme and it was negative. tested for lupus that was negative. Some of the bloodwork showed vitamin deficiencies which I have started taking supplements for.

 

[Novascotialady]

Lumbar stenosis ruled out by Recent MRI …

 

[tori28tims]

Hi new here. It’s been three years for me seeing specialist after specialist trying to find out what my pain generator is. Does anybody struggle or have an inability to sit longer than two minutes. I have severe pain in low back that radiates down my right leg. Burning and stabbing pain . Thanks

Yes i have been like that before. I ended up going to physical therapy which helped alot. I have flare ups from time to time with my low back and hips.

 

[Novascotialady]

Hi tori28tims
Thank you for your reply! I’m so sad that you had to go through that. The pain , fatigue and RLS symptoms are relentless. Sometimes I think I’m taking a turn for the better, lasts for only a few days, and then it gets worse again . Some days I am worse than I was two years ago. No quality of life. I cannot do anything outside my home .

 

[johnsalmon]

Novascotialady said:
I feel discectomy would help my misery .
at your age its best to stay off the table - the trick with arthritis is that if you sit the pain gets worse if you move then it gets better and as i said if you have a heated pool in the area then regular sessions with exercises designed by the physiotherapist will help to strengthen the muscles in the back. actually a physiotherapist will not cure it but will teach you to minimise the pain. and can suggest a lot of life aids that will make it easier to do day to day activities. I have suffered from the same pain that you feel since I was 16 it was fixed in my 30's am now 78 and entering back into arthritic pain due to old age - as I said before I feel your pain

 

[Novascotialady]

Hmm confused ? At my age .. I am only 51, hoping I have a lot more good years left . I was a very active and athletic , outdoor enthusiast! Now sadly I struggle to do my Physio exercises…

 

[JayCS]

Yes i have been like that before. I ended up going to physical therapy which helped alot. I have flare ups from time to time with my low back and hips.

Hi tori28tims and welcome!
Good that PT helped you: Which type exactly was it? Cos normal physio harmed me, esp. the sort you go to, rather than doing youtube.
(Like said - osteopathy, acupressure and other manual therapy was quite good though. Better now youtube exercises & stretches incl. yoga, self-acupressure.)

 

[sunkacola]

I do have a tinge unit

What is a tinge unit?

 

[sunkacola]

Hmm confused ? At my age .. I am only 51, hoping I have a lot more good years left . I was a very active and athletic , outdoor enthusiast! Now sadly I struggle to do my Physio exercises…

There is no reason you would not have a lot of good years left. People have good years, and create for themselves a good life, despite all kinds of disabilities and hardships. People are creating a good life for themselves despite being paralyzed, living in a refugee camp, missing limbs.....you name it.

None of these things is any better or less awful or worse or more awful. All are hardships, is all.

And if you are determined to have a life you will have a life. I am also an outdoor enthusiast, and cannot do what I used to do and it's hard because I miss it. But I look at it like missing those I have deeply loved and who died. They are not here, that makes me sad sometimes, and I can't change that so I just focus on enjoying the good memories. I cannot do X or Y any more, and that makes me sad sometimes, but I have great memories. No point, I always figure, in my wallowing in it or feeling sorry for myself. There are many things I can still enjoy, so I do and I milk that enjoyment for all it's worth and go on to the next day. I think I live a good life. I don't have money and I have fibro and I don't have a partner and blah blah blah. But I have a good life anyway.

You will work this out and find how to live well with it, too. You can do it.

 

[johnsalmon]

at your age its best to stay off the table

I am not saying that at 51 your life is at a end just that at that age its best to stay off the table and look for other ways - as the spin e ages problems can arise more so then in your younger days ie fix l5/s1 and l5/l4 decides to cause problems due to the displacement of l5 etc bone spurs are more common with damage to l5/s1 with surgery etc

51 is a good age to be

 

[Novascotialady]

All good

 

[Novascotialady]

Absolutely. There is an acceptance of some loss but I am grateful and count my many blessings every day . Thanks for your kind words .