Hi Slidee, welcome from me too!
You're asking for tips and have posted under "do I have fibromyalgia?" too, so here come my ideas....:
I was diagnosed with fibromyalgia back in 2010 along with PCOS and just got diagnosed with Hashimotos this year. I’m not sure if it’s just fibro or combo of all of it, but I deal with chronic fatigue, joint and muscle pain, muscle cramping, chronic headaches, dry eyes/mouth, lower back pain, morning stiffness that can last over an hour, and just body aches. I feel like I have the flu at times but I know it’s not the flu.
All of your symptoms incl. the flu feeling are very compatible with fibro alone, and typical, incl. dry eyes/mouth and chronic fatigue - I have both and have nothing else to explain it. If you'd need more convincing you have fibro, you could fill in the ACR 2016 criteria questionnaire (or the "test" on the main site of this forum). Dry eyes/mouth and morning stiffness are the only ones of your symptoms not listed there as being diagnostic, but in all my / our experience it is. - My variety of stiffness goes away after 5' of movement, but is there the whole day every time I don't move for 5-10' or longer. So I'm constantly on the move, twist-stretching in all postures and now I've developed a gentle slow movement most of the day, with little rest.
Whether dryness is from the Hashimoto's or not, as
@johnsalmon suggests, might be decidable from the association between symptoms and the diagnosis. If you remember or feel the dryness is new and the condition is too, then that would make Hashimoto's more likely. However in my experience it doesn't matter much what comes from what, since each of my symptoms, esp. these 2, have to be treated singly.
A 3rd explanation for those areas of dryness is Sjögren's syndrome, a 4th is sicca syndrome (in my case also skin, throat and stomach hyperacidity, not gut, that'd be IBSC). But the labels don't help me.
Same goes for the chronic fatigue if you had it all along.
Comparing with PCOS symptoms I'd suggest all the symptoms you've listed can be better explained by fibro than by PCOS. More overlap would be in mental aspects like depression or anxiety.
I have tried Cymbalta, Amitriptyline, and no relief. I am trying Savella and low dose nal-trex-one and it’s only been a month but still no relief. I was tested for RA and Lupus and negative but I had a positive ANA but it just went away.
Wow, that sounds like you have docs that know pretty exactly what they are doing. As far as meds go, duloxetine/Cymbalta, amitriptyline and milnacipran/Savella are some of those that mainstream studies have proven as "not completely useless for some" and you have 2 of 3 meds approved by the FDA for fibro. Judging by that selection I'm just a little surprised that pregabalin/Lyrica wasn't tried before Savella, as it is also FDA approved and studies say it's quite a bit better. So I assume that there were well considered reasons against Lyrica.
Low dose naltr-exone (we have to bungle the word to punt(?) the moderator queue) also means your docs know what they are doing, because the risk for not harming not helping is possibly as high as the others.
@johnsalmon: L.D N (we have to bungle the abbreviation too) is only <10% of the pill that's used as opioid antagonist and in that concentration (or 1% or 20%) has been found helpful for fibro pain and similar. However only a few small partial studies have confirmed this, so it's mainly based on many anecdotes. Looking at the forums, I've found it to be about equal whether it helps or harms, so have considered trying it myself. My latest trial with 3% of T4 for thyroid (I may have an inkling of Hashimoto's too) went so badly that I think I'll be dropping it from my list. (The 3% by the way was inspired by my many intolerances plus the low dosage used with nal-trexone, I played with doses of 1-5% and found big differences, 3% had the best positive effect, but several significant side effects.)
No relief? - Well, in my experience you'd be lucky with that, since most of the meds I tried greatly harmed me, doubled the trouble. I can imagine tho that they did harm you, you just didn't mention that bit.
Positive ANA and it went away? Could that be associated with the Hashimoto's? My autoimmune bloods have always been fickle too - coming and going or not enough over the top to seem important. But it's a question I've put to my new onco specialist, as I don't believe they'll find anything else cancerous, but maybe he has an idea.
Just wanting any tips if anyone can offer. I work full time, have a child, and main care taker of the house as my husband works a lot of 12 hr shifts. Sometimes it’s hard to get through the day and at the end of the day I can barely move I hurt so much.
Wow. Wow. And it sounds as if you feel you have no choice. I can only say if I'd stopped working full time in time, instead of pushing thru, I might not have crashed into the full flare I've been in since (3y+) which forced me to drastically cut down. I hope you've set aside some time every week to think and discuss how you can cut down even more on all areas. Apparently you start off each day better after or besides the hour of morning stiffness. If you'd be
starting the day barely able to move cos you hurt so much, that would be the backlash from the previous day you need to keep down or best avoid completely. As you have the responsibility for the child together, it'd be important for you, your husband and even child, to understand what you are living thru and what high risk all 3 of you are taking in pushing thru and take measures to reduce the risk. Distraction or denial will increase the risk.