I have been to many, many doctors. It all started a little over 2 yrs ago. We have two handicapped adult male children. Our children are yours, mine, and ours. We love them unconditionally. Two 28 yr boys, one 24 yr boy, one 11 yr old girl.
My 24 yr old lived with his mom for 5 yrs. Courts gave her primary custody. He would cry at age 9, 10, 11, 12 when it was time to take him back to his bio mom. Drinking, pills, many different men in the house, mentally and physically, she was not there for him most times. My attorney could not help me get custody till he would say "I want to live with Dad" With him living in that hell, he now has PTSD, OCD, Panic Attacks, Intrusive thoughts that scare the hell out of him. There is more issues, but you get the point. When my wonderful 2nd wife and I got custody, we took him to many psyc drs. He was admitted several times to a unit. So far, admiited 12 or 13 times. My heart was broken and I just wanted to die when a dr called me and said "For the best interest and safety of your son, and your family, we have decided your son cannot come back home. He was placed in a home, against his will. The darkest day of my life. I went thru many years of hate toward his mother, he has never to this day told all that he was exposed to. His mothers mental issues ran so deep, after 14 yrs of marriage, she asked if I ever wanted another child, and I said yes, I had often dreamed of a daughter. So after many years of very little bedroom activity, we got "Busy" Two months later, preg. test said yes. Our 1st dr appointment, her dr said, at 38, the first trimester you must be very careful, past your 4th month, you will be fine, just try not to be lifting really heavy objects. Fast forward 5 months, I come home 3 days in a row to a defiant woman that has haul almost 2 cords of firewood to our house. She was very quiet for days. Got a phone call from dr office to come get my wife and take her to hospital, she had sat, bleeding, in the wainting room for 3 hours to make sure she had got things messed up real good. Stayed in hospital 11 days, during this time nurses had been telling me, prepare yourself, her water is broke, and the baby cannot survive. I got a casket, my church gave me a plot, all the while wife would not allow visitors or talk with me about our baby. Baby comes, it's a girl, beautiful. She moves a few seconds, and she is gone. Wife never looks at her. I tell her I have a service planned, she says NO, let the hospital take care of "IT" I protest, but am told its the mothers choice. She was burned in the hospital incinerator. No, we flash back to my son years later being put in a group home, I had neglected taking care of myself, plus who could afford it with all the debt I inherited from my failed marriage, 1st wife even went and got a "boob job" on a credit card before she left. Two days before Christmas, two years ago, my jaw swells, and I am in pain. I find a dentist that would see me and he tells me I have 2 abcessed teeth beside one another, top, right, rear molars. He has to cut them out. Three weeks later, I go back for two more extractions, only one absessed this time. I was on antibiotics both times. Losing my son, and the dental issues all were inside a 5 month window. That January and Feb, I used up every sick day I had accumulated, plus took every vacation day I had. I spent most every one of those days in the bed or on the couch. I hurt all over. It hurt to stand, walk, sit, lie down. No matter how much I slept, I still felt worn out. I have been to so man drs. Four in fact, are endo's. They all checked my thyroid, all said 75mcg of synthroid had me right in the middle, and that was good. My GP sent me to hospital lab down the street. They checked blood cortisol levels at 8AM reading .4 then again at 2PM reading .3 and again at 8PM .3 Bingo! they think I have addisons, off we go to a new endo, she does a test where she checks 8AM blood cortisol level, it was 12.7, then injects me with cortrocyn? and it goes ups to around 17. She says I have mild adrenal insuff. And with thyroid on low side and gonads too she said something about polyglandular. She prescribed 5mg of Prednisone each morning. It did nothing at all to give me my energy back, but did push my BP even higher. She wanted to see me in 90 days. I was unhappy, made apt with 2nd endo, he said my thyroid tests looked good, continue with 75mcg of synthroid. He said he would like me to try hydrocortisone pills instead of prednisone. I started 30mg per day. after several weeks, no change in energy, but blood pressure up, and my IBS or Crohn's was not bothering me at all. During all this, my GP had set me up for a colonoscopy, my urologist said he felt a 2mm bump on my prostate. Procedure went well, no signs of active Crohn;s but many benign polups were removed. No lump or bump on prostate. Always have had really high BP, and the hydrocortisone was not helping it a bit. I was sent to adrenal specialist in Charlotte. He looked at all my tests, ran a cortrosyn stim test of his own, and said you may have adrenal function on low side of normal, but you must stop taking the hydrocortisone. You do not need it. That helped BP come down a little, but started my IBS or Crohn's back really bad. My GP found several blood tests she was able to do that confirmed crohn's along with my symptoms. I have not cut corners on dr's or tests, I really want to be well. One other test that may back up the fibro/cfs diagnosis, my sleep study showed no sleep apnea, but it did show that I never enter that realm of sleep that doctors say folks with fibro never get. I have about exhausted all resources, if you have another idea or question let me know. Thanks for all the response