girlytoshoes87
Active member
- Joined
- Jan 6, 2015
- Messages
- 37
- Reason
- DX FIBRO
- Diagnosis
- 10/2009
- Country
- US
- State
- NY
Hi I am Steph. I am 27 and currently live my parents. I have been diagnosed with fibro since 2009 but it has lingered with me for years. my life at times is unlivable. Since I was diagnosed I have been on many different medications and thats including Gabapentin. I did not do well with it and it made me gain 20 pounds that next summer. I am now on Lyrica and Tramadol. But I am unable to lose the weight because I am in to much pain to exercise. The Lyrica for me doesnt help to much. I can atleast say I can sleep at night. In the day I am always tired and feel like I am in a fog. I stumble over my words and at times stumble over my own feet. The pain is so bad it just moves from one inch to the next on my body. I also have painful joints including my back, knees and ankles. I was diagnosed with innerstitial cystitis as of last year and was prescribed Elmiron. Sadly this medication can take up to a year before I see a difference. So I am in so much pain from that also. I also have Overactive bladder. I also have Ibs(irritable bowel syndrome). Ibs and the bladder problems I can say for sure has ruined my life. I don't have any social life what so ever. And it has kept me from working or getting a job. I try hard to go on with my days. Its hard. I feel alone about this whole situation. As of yesterday I called in for an appeal for disability. I also talked to a lawyer and from my understanding I wasn't approved because I am not consistent with seeing all my doctors/physical therapy. And their consistent is saying I can't miss 3 or 6 months. Yet the other 9 or so months I am consistent with seeing all my doctors. They don't know what my days are like. I can't get out of my house because I constantly have to use the bathroom every 30 minutes. I don't have a car and its winter. What did they expect. I am frustrated with the whole process. Whats worse is that I have Cubital tunnel syndrome which is basically carpool tunnel but in the elbow. I sat here typing this and now I have shooting pain going up and down my arm