darkchocolate
Active member
- Joined
- Oct 13, 2015
- Messages
- 47
- Reason
- Undiagnosed
- Diagnosis
- 00/0000
- Country
- US
- State
- SC
My pain started with both ankles aching and "burning" in January and a few days later my thighs ached liked I had done a workout yet I hadn't. I hadn't been on the treadmill because I thought that is what caused my ankle problems. Then I started with the tingling and numbing sensations in my legs that went to both arms. This was all within a week and half.
I had lots of blood work done originally, then a brain MRI because of the suspicion of MS. The blood work and brain MRI were normal, thank the Lord.
In February, I had a nerve study (EMG/NCV) done and that was perfectly normal as well.
I continued with problems and tried a chiropractor but my problems persisted. The numbing and tingling sensations stopped. I was told to consider stopping all artificial sweeteners and I did. So I don't know if there is a correlation or not.
I was then diagnosed (end of April) with hypothyroidism. I was told hypothyroidism can cause joint pain and muscle aches, so I made another doctors appointment hoping this might back the difference. The thyroid medicine did help with the fatigue, but the muscle aches and burning pains persisted. I figured I would give myself the summer to "recouperate" no school (I work as a special education aide) and I would feel much better. The fatigue did improve greatly.
My lower back bothered me still (burning pains) and the pains (muscle aches and burning sensations) in my leg were greater than my shoulders, so my primary doctor sent me to a orthopedic back specialist. Lower lumbar MRI was negative (except for mild arthritis) so he sent me for a epidural injection. That didn't help. The doctor who saw me for the injection sent me to a neurologist who is now sending me to a rheumatologist. The neurologist did lots more blood work which all came back normal.
I also had a cervical MRI which was normal.
The orthopedic doctor started me on Gabapentin, it did take the edge off but didn't take the burning pains away. The neurologist started me on Lyrica 50mg 3 times a day, October 6, 2015. One week later I didn't feel any better so she increased to 75mg 3 times a day.
I am now waiting on a referral to a rheumatologist. Sometimes my shoulders will burn, but that is more muscular below the joint. I have more muscle tightness in my upper back, but not real pain.
I don't have the extreme fatigue that a lot of people talk about. I did have fatigue last spring, but the thyroid medicine has helped that.
The neurologist said she can't find anything wrong, so we just treat the symptoms. I told her something is causing this, "are there other people like me?". She then mentioned the possibility of fibromyalgia put usually people don't present so abruptly. I am thinking to myself, the first symptom has to start at some point.
I would appreciate any input or experiences you are willing to share.
I had lots of blood work done originally, then a brain MRI because of the suspicion of MS. The blood work and brain MRI were normal, thank the Lord.
In February, I had a nerve study (EMG/NCV) done and that was perfectly normal as well.
I continued with problems and tried a chiropractor but my problems persisted. The numbing and tingling sensations stopped. I was told to consider stopping all artificial sweeteners and I did. So I don't know if there is a correlation or not.
I was then diagnosed (end of April) with hypothyroidism. I was told hypothyroidism can cause joint pain and muscle aches, so I made another doctors appointment hoping this might back the difference. The thyroid medicine did help with the fatigue, but the muscle aches and burning pains persisted. I figured I would give myself the summer to "recouperate" no school (I work as a special education aide) and I would feel much better. The fatigue did improve greatly.
My lower back bothered me still (burning pains) and the pains (muscle aches and burning sensations) in my leg were greater than my shoulders, so my primary doctor sent me to a orthopedic back specialist. Lower lumbar MRI was negative (except for mild arthritis) so he sent me for a epidural injection. That didn't help. The doctor who saw me for the injection sent me to a neurologist who is now sending me to a rheumatologist. The neurologist did lots more blood work which all came back normal.
I also had a cervical MRI which was normal.
The orthopedic doctor started me on Gabapentin, it did take the edge off but didn't take the burning pains away. The neurologist started me on Lyrica 50mg 3 times a day, October 6, 2015. One week later I didn't feel any better so she increased to 75mg 3 times a day.
I am now waiting on a referral to a rheumatologist. Sometimes my shoulders will burn, but that is more muscular below the joint. I have more muscle tightness in my upper back, but not real pain.
I don't have the extreme fatigue that a lot of people talk about. I did have fatigue last spring, but the thyroid medicine has helped that.
The neurologist said she can't find anything wrong, so we just treat the symptoms. I told her something is causing this, "are there other people like me?". She then mentioned the possibility of fibromyalgia put usually people don't present so abruptly. I am thinking to myself, the first symptom has to start at some point.
I would appreciate any input or experiences you are willing to share.